Archive for September, 2010

Checkers with Tata

Share

Today has been a day of disappearing moments.  I woke up this morning and I swear it was time to leave the house right after I finished breakfast.  Usually, I eat faster than that.  Then, I got to work and had these lapses of time where I must have been one with my computer as lunch time past me by without saying a word.  I ended up eating lunch around 1:30.  Not too bad, though I tend to shot for noon.  At around 3:30 I was sitting at 119 for a blood sugar and 30 minutes from home.  At four, I was at 262.  There’s that magic sugar again.  I took 3 hits of insulins and ran home.  When I got to the house, Mamma had already made dinner and my blood sugar had made the dramatic drop down to 260.  Where is the sugar coming from?  Oxygen now contains 15 grams of carbohydrates per inhale.  I feed both children and then Tata and I played checkers until 8:00.


That’s right.  My five year old daughter is playing checkers.  She really wants to play chess, but I’m waiting for her to get checkers down first.  It is so awesome to watch the learning process.  Initially, she was just moving the pieces forward to their doom, but now there is concentration and planning.  She looks at the other pieces on the board and watches to see where she can go safely.  She is still not a champion checker player… Because you are? But it is awesome to watch the learning process; one game at a time.

Eating While Diabetic

Share

My diabetes education was not the greatest.  I was diagnosed with diabetes in Italy, so I didn’t have what I believe is standard training in the U.S.  I didn’t learn about bread choices; I learned that I take insulin according to how much I eat and eventually I just get used the right amounts.  Seriously?  Have you seen your levels?  That really hasn’t worked.  Through reading online and a book called Diabetes for Dummies, I have learned that my rapid insulin should be about 1 unit for 15 carbohydrates.  For the most part that works.  Through slow adjustments, I have learned that about 20 units is what I need for my lente insulin.  When I keep track, these numbers work almost all the time.  Almost.  There are times when those numbers don’t.  I have found that some foods, just don’t seem to play by the rules.  Frozen pizza, for example, usually has the number of carbohydrates listed on the side of the box.  If I take the amount of insulin mathematically required before I eat, my blood sugar will drop very low very quickly.  If wait until after eat and then take the amount of insulin to bring my blood sugar down to normal, I will be taken insulin all night long and my blood sugar will be stuck in the 400s.  Apparently some carbohydrates change to sugar much later than others.  Ice cream is another good example of this and, as I discovered yesterday, brownies are also good for this little practical joke.  I’m going to start a list of foods that should come with a warning.  It should read like this, “WARNING: By eating this product, you acknowledge the fact that it contains Magic Sugar and may not affect your blood sugar as expected.”


When I started seeing an endocrinologist in the U.S., he thought it would be a good idea for me to speak with a nutritionist to help get my meals on track.  I saw the nutritionist one time and knew that I could not deal with that woman any more.  We argued over how many carbohydrates a peanut butter sandwich had.  I said, the bread was 15 a slice and the peanut butter was about 6 which gives you about 36 per sandwich.  She said, I didn’t have to worry about the peanut butter because it wasn’t enough to change my sugar levels so the sandwich was only 30.  I tried repeatedly to tell the woman that I never eat one peanut butter sandwich at a time.  I usually eat 3 or 4.  That makes the peanut butter a little more valuable, but she was intent on telling me who wrong I was and that her statements were based on “evidence based research”.  Because your information was just based on eating while diabetic.  


This is how things have been since day one.  Lately, I have been trying to get control over my blood sugar.  Things like magic sugar have been the road blocks to my success.  Friday, my Ramon noodles had magic sugar.  I tested my blood and the meter said 91.  I took 4 units, which is what I always take for Ramon noodles.  Two hours later, I tested and the meter said 120.  Then, after I arrived home from work, I tested again and the meter said 400.  I ate nothing between Ramon and getting home.  No sugar added.  Where did the extra sugar come from?  Maybe the air was high in carbohydrates on Friday.  Did you check the forecast?  I can’t think of a responsible answer to that question.  It doesn’t happen as often anymore, but it still happens.  It is extremely frustrating.  If I can figure out how to solve the magic sugar problem, that will be one less road block.  The next problem to solve is being hungry when it is not time to eat.  Impossible.  You’re always hungry.

Storms, Ice Cream, and Diabetes

Share

Every day feels like another tornado.  In the mornings, Tata is in school while I am at work.  In the evenings, Mamma is in school.  I was going to start trying to help get some of the cleaning done.  I think I say that to myself every night.  This was the first night that something else wasn’t going on.  Instead of rushing all over trying to get things done, I spent an hour in the kitchen trying to figure out what I was going to cook.  I strongly believe that every meal idea from our kitchen is missing one ingredient.

Mamma doesn’t like cheese, but Tata and I do.  Perfect night for Kraft Macaroni and Cheese, if we had milk.  Tuna fish sandwiches would be good, if we had mayonnaise.  Can’t complain about sloppy joes, if we had ketchup.  How about some shepherd’s pie?  All out of ground shepherds.  No, we don’t have cream of mushroom soup.

Squishy has also been very helpful.  Normally we have a plan.  I try to feed her at 6 and at 8. She eats and 5:30 and 9.  Tonight, she would not eat any where near 6 o’clock.  She smiled, she laughed, she blew bubbles in her milk, but there was no swallowing.  Did you just say that?  Too many jokes.  At 8:30, I was trying to get Tata’s hair dry and get her into bed.  That is when Squishy finally decided to be hungry.  If that was what one hungry baby sounded like, world hunger must be deafening.  I figured she hadn’t eaten yet, so I warmed up four ounces of Mamma’s milk.  Then, the screaming started again, and I warmed up four more.  Then, the screaming started again, and I warmed up four more.  Believe it or not, that wasn’t redundant.  The last four are sitting on the coffee table, and now Squishy is sleeping.

That isn’t anything new though is it?  That was new to me.  Life is life.  Some days are easy and some not so much.  Weather we have diabetes or we are perfectly healthy, the only thing certain about tomorrow is it will happen tomorrow.

Who wants to talk about diabetes?  What’s your blood sugar?  That’s a great question.  Brief dramatic pause for testing.  The result is 168.  That’s not between 80 and 120.  When this was my job, I was able to keep the sugar in check.  Quitters don’t have bragging rights.  Now, I get to take 1 unit of insulin.  I’m still hungry.  I may take just a little more.  Anyone for ice scream?

Anti-spontaneous

Share
D + S = P  Where the value of D is diabetes, S is spontaneous, and P is problem.  Though it is a very simple formula, I still have trouble solving it.  I’ll say.  
Insulin Pens
I use insulin pens for my injections.  I have to decide how much insulin I need.  Then, I turn the back-end until the white arrow points at the number of units I need.  One pen holds 100 units and will last me a few weeks.  Every unit makes a clicking sound while you are turning the end of the pen.  When it is out of insulin, the end will no longer turn.  The clicking stops.  I can’t count the number of times I have eaten a large meal full of carbohydrates only to remember that I need insulin.  I estimate my carbohydrates, pull out my insulin pen, go to twist the end of it, and nothing.  See! I’m not the only one not producing insulin.  The problem is that I do not check my pens before I leave the house.  You should.  I know I should, but when it is time to walk out the door, it doesn’t cross my mind.  There is that adult ADHD again.  Inevitably, I’ll spend hours with an extremely high blood sugar, and I’ll have no way to fix it.

That brings me to my point.  It’s about time.  For a diabetic, I do not feel we have the luxury of being spontaneous.  Granted, being a father, doesn’t leave lots of room for it either.  It still becomes really frustrating because I can’t just crash somewhere if I am too tired to drive home or if we decide that we are going to spend an extra day somewhere.  For example, the last time I visited The Lawyer, we thought about staying for the night.  It wouldn’t have worked.  Not only did I forget my lente insulin (lente insulin is the insulin I take every twenty-four hours to regulate my blood sugar throughout the day), but I also didn’t bring enough insulin for dinner.  Which dinner?  You had three or four.  Then, I had desert.  And lots of it.  We couldn’t stay.  It would have been too spontaneous.  I should have brought more insulin for dinner and desert, but that doesn’t change the fact that my lente insulin was at home.

There are many little things that diabetics have to remember in order to keep their blood sugar in check.  I’m not very good at any of them, but I’m trying to get better.  I’m trying to get better too.  Retirement can be difficult.  Everything is one step at a time and one day at a time.  The last few have been much higher than they should have been.  Tomorrow starts another work week.  Starting this blog has helped a bit.  I want to write some good news in it.  My next appointment is October 5th.  If I keep my sugar right until then, hopefully, I’ll come home with less than a 9.  I would like to write about that.  I would really like to write about having a 6 or a 7.  Sure, I can see that.

The Day I Found Out

Share

Believe it or not, I was not always a diabetic.  I lived for approximately 25.5 years before my pancreas decided it was no longer going to perform its duties as the insulin factory of my body.  Take this job and shove it.  I ain’t working here no more.  I can’t remember exact dates and times, so I’m going to make those parts up.  Everything else is truth.  Only slightly exaggerated.


I believe it was November of 2005, when things really started.  I wouldn’t take notice for a few more weeks, but hind sight is 20/20.  My weight has been fairly static for most of my life.  When it does change, it changes drastically.  Going into the Army I weighed about 165 pounds.  By the time I was discharged, my weight was around 210 pounds.  I stayed somewhere between 195 and 205 for the immediate years to follow. Both years?  In November, my weight dropped down to 164 pounds.  The important thing to notice is “In November” instead of “by” or “as of”.  I lost over 30 pounds in less than a month.  I blamed my mother-in-law.  For some unknown reason, she was making pasta with tomato sauce for dinner almost every night.  And she was making just enough for each person at the table to have one serving.  My father likes to tell people that he had to take me to an all-you-can-eat buffet when I was growing up in order to make me full.  Oink! Oink! One bowl of pasta was not enough for a snack.  I assumed that I was losing weight because I was not eating enough.  The fact that I felt like I hadn’t eaten in months, only added to this belief.

Next, was the peeing.  Suddenly I had to pee every 10 to 15 minutes.  I would leave the toilet only to walk to
the next one.  Traveling is difficult when you have to stop at every restaurant along the way to pee.  Then, I realized I was drinking a lot of water as well.  Well, that explained it.  I was drinking too much water.  I thought, if I could just stop drinking so much water, the cycle of endless peeing would stop. He keeps saying pee.  This is fun.  But I couldn’t stop drinking.  I was extremely thirsty.  I was starting to become more and more aware that something was wrong with my bladder.  Mamma thought she had the answer and antidote.  Mamma thought I had a bladder infection.  Mamma said cranberry juice helps with bladder infections.  In order to fix my bladder infection, I started drinking cranberry juice instead of water.

At the same time, a totally unrelated problem was occurring.  Unrelated?  Right.  My eye sight was getting worse.  I had been using the same prescription since I was 16, so I figured it was about time for me to need knew glasses.  The strange part was how badly my eye sight became in such a short time.  I stopped wearing my glasses because I could see better with out them.  That wasn’t saying much, since I couldn’t see more than about 5 feet in front me.  I stopped driving, I stopped riding my bike, and I got very used to saying hi to people I couldn’t see and hoping that I knew them.

I finally had enough.  Finally?  I’ll say.  I sent in my resignation in November and you wait until December to start looking for my replacement.  After adjusting the screen resolution so that I could see what was on it, I did a Google search for my thirst, hunger, and frequent urination.  The very top link in the search results was the American Diabetes Association.  The URL, for those that do not know, is http://www.diabetes.org/.  I noticed other symptoms that I had as well: blurred vision, fatigue, irritability.  There was no question in my mind.  I started reading everything I could.  I just kept thinking, this can’t be real.

I called Mamma and explained what I had discovered.  At which point, she immediately called Uncle Doctor and he agreed with my self-diagnosis.  They both agreed that I should go to the hospital immediately.  I took a little convincing.  I had made it this long, I might as well finish the day before going to the hospital.  I was being paid by the hour and we needed the money.  Mamma wasn’t having that so I was leaving work and heading straight home.

Have you ever had to tell your boss something that made you a little uncomfortable?  Try telling your boss that you have to leave because your wife says so.  Try telling your boss that you have to leave because you may have diabetes.  Try saying all of that, when no one else has noticed a single symptom.  Try saying that when the only person who knows the problems you have been having is your wife.  I was completely unprepared for my boss to ask me what my symptoms were and then to agree with my diagnosis.  I was also completely unprepared for her to shove me out the door.  Everyone else in the world was more concerned about me than I was.  I felt fine.  I was just thirsty, hungry, blind, tired, and had to piss like race horse.  Other than that, fine.

I returned home to find that Mamma had already packed everything to take Tata to Nonna’s.  Tata was only a year old at the time and Mamma wasn’t letting Tata go to the hospital.  She told me to shower, change, and pack a bag.  She left to drop off Tata, while I was supposed to be ready by the time she got back.  I knew nothing about diabetes.  I thought that diabetics could not eat sugar.  I figured if I was going to be diabetic, I was going to eat all the sugar I could before I got to the hospital.  I thought that was my last chance to taste sweetness.  I ate everything I could get my hands on.  I had 3 or 4 pudding cups, a couple of Mountain Dews, a bag of Oreo cookies with some milk.  I mean everything.  And you wonder why I quit?  Mamma came home and we walked to the hospital.  The hospital was less than a block away.

We arrived at the emergency room and Mamma told the receptionist that we needed to see the doctor because I had diabetes.  You could almost hear her eyes rolling.  In this emergency room, patients were separated into colors based on priority.  I don’t remember what the colors were, but we were placed at the bottom.  We waited.  And waited. And waited. And waited.  When it came time to check my vitals, the nurse tested my blood just for the sake of argument.  She was so certain that Mamma was crazy that she didn’t even wait for the result before sending us back to the waiting room.  I had enough time for my butt to touch my seat before she came running back to us.  I don’t know what she was saying.  Whatever it was, she was saying it very fast and pointing.  I followed the finger and the directions from my wife.  I skipped all levels of waiting.  For some reason, I was moving from the why-are-you-here waiting room, passed the you-have-a-boo-boo waiting room, passed the fairly-urgent waiting room, and even passed the we-hope-you-survive-the-wait waiting room.  I went from no-hurry to a gurney.  My condition was upgraded immediately.  More like down graded.  Everyone was yelling in Italian.  I had no idea what was going on.  They were all speaking to Mamma, and they were all speaking so fast that all I understood was “lui”.  ”Lui” is the Italian word for “he”.  I was pumped full of water, given a shot, and moved immediately to the in patient section of the hospital.  Good thing you packed a bag.

When things finally calmed down, I asked what was going on.  I was told that I had diabetes and that my blood sugar was very high.  I asked how high.  The nurse told me that my blood sugar was over 1,000.  At the time, that meant nothing to me as I had no concept as to what a normal blood sugar was.  My non-medical understanding is that with a blood sugar of 1,000 I should have been well into my stroke, I should not have been able to stand, I should have been stiff as a board and waiting for my insulin.  Instead, I was walking, talking, laughing, and blind.  You truly are special.  And that was the beginning.

I was admitted to the hospital on December 22, 2005 and was released 5 days later.  I joke that I was so bad that year that Santa Clause brought me diabetes instead of coal.


Bear